Monday, December 27, 2010

Support feels amazing.

Amazing.

Support feels amazing. After posting my blog about my sweet Evelyn many of you reached out via email and comments on facebook to let me know you were thinking about us. It has truly been what I needed, a team of people praying, so I thank you.

I am being carefully optimistic that the formula is helping the weight issue. She looks bigger to me. I have a shipping scale that I have been compulsively setting her on but it's not accurate so I can't gain much hope through what it tells me! After a weekend at my parents to celebrate Jesus' birth and a lot of talk about what to do we've made some decisions.

Evie's last few tests came back okay but it doesn't convince me she doesn't have CF. My daughter sweats like crazy. You pick her up and her back and head are soaking wet. It's very strange. I decided to call the doctor and ask him about this issue. He told me that normally he wouldn't worry to much about a sweaty baby because every ones metabolic rate is different. He then asked me about ten other questions and after telling him she sounds congested and has a snotty nose he told me that she needs to be seen.

We go in on Wednesday and are going to talk about what to do and where to go. Hopefully she's gained something and they can keep ruling things out. I've decided that I am going to push pretty hard for the sweat test to get done, even if I have to pay out of pocket for it. My daughter's health is worth far more then money can buy.

I am trying to keep my head held high and a smile on my face. It's hard to wonder and it's even harder to keep my mind from focusing on the things it could be. Hopefully all these tests will just prove that I have a beautiful, strong, HEALTHY baby girl!

Thank you for all your support, prayers, emails and thoughts. We truly appreciate all the kindness.

Oh, and congrats to the Foley and Wright families on their new baby girls....Marian Foley and Clara Wright, both VERY beautiful angels.

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